"Our child is PKU (abbreviation of phenylketonuria). We have a good control, adhere to diet therapy, and later go to PKU (abbreviation of Peking University) to become a person who has contributed to this country. We are concerned, cared for and cared for by the state and society. We will grow up healthily and hard, and we will become doctors, teachers, architects and other people who are meaningful to this society … I think this is what our country calls inheritance. " Recently, a letter from a parent of a PKU child touched many people. Behind these letters, there is a "relay for life" for a group of "out-of-touch children", including Danone nutricia and Viola tricolor Rare Disease Alliance.
PKU children can’t eat food containing natural protein because of congenital lack of an enzyme, so they must rely on special milk powder containing no or low phenylalanine, rice and noodles. Because the research and development of PKU products requires high scientific research ability, large investment, low incidence of PKU and small market demand, there are few production enterprises. Newberry Newbeifu and Newbeizhen milk powder under Danone nutricia are PKU special medical use formula products registered through China formula.
Since the outbreak, the closed traffic and the shortage of medical resources have made this special group face the dilemma of food shortage. On February 14th, the staff of Corydalis esculenta Alliance for Rare Diseases found that the children in nearly half of the epidemic areas were nearly out of food when they counted the medical materials of their patients. "Children with rare diseases have always been the focus of national and social attention. It is the common responsibility of the government, enterprises and all sectors of society to solve the problem of rations for them and protect their healthy growth. " Hui Lin, head of the market of the Seven-color Corydalis Rare Disease Alliance, said, "After receiving help, we joined forces with the Zhejiang Smile Tomorrow Charity Foundation to launch an operation overnight, and set up a cross-industry public welfare project coordination group for the first time."
Soon, Danone nutricia received a letter of help from the State Administration of Market Supervision. The family situation of more than 200 PKU children in urgent need of help in the letter affects the heart of the whole company. The company immediately decided to provide each child with a month’s "food ration" for free, and quickly started work-counting demand, actively adjusting goods and coordinating logistics.
In order to ensure the supply of products, the customs of Waigaoqiao Free Trade Zone under Shanghai Customs quickly inspected and released the relevant batches of nutricia special-purpose infant formula powder; The leaders of Hubei Provincial Department of Commerce awarded the label of "Products Guaranteed by People’s Livelihood" to give priority allocation and fast access support … With the coordination and support of the General Administration of Market Supervision, Shanghai Customs and relevant government departments in Hubei, as well as the joint efforts of the company’s internal team, logistics companies and volunteers, in just ten days, Newbeizhen and Newberry in nutricia were delivered to the aided families all over the country, including Wuhan, which solved the urgent need of children with food shortage.
It is reported that as a leading brand of special medical nutrition, Danone nutricia has long been committed to caring for these special groups and providing a lot of help. In 2016, nutricia launched the "Rainbow Care Plan", a public welfare action specifically for families of PKU patients, which provided a new communication platform for families of children through a variety of online and offline activities. This project allows lovely lives to plug in the wings of dreams, and rekindles the hope of life for families on the verge of despair.
In addition to caring for children with PKU, nutricia has also launched a series of public welfare projects for babies with special nutritional needs. For example, the "special love-allergic baby nutrition growth plan" for allergic baby families, and the "Xingcheng 90" infant growth optimization project initiated for malnourished and slow-growing baby families.
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